Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care
About this study
The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.
- Condition
- Leukemia, Lymphoma, Myeloma, Myelodysplastic Syndromes, Myeloproliferative Neoplasm
- Tested
- LLS Program
- Sponsor
- University of Miami
Who can join
- Age
- 18 years and older
- Sex
- All sexes
- Healthy volunteers
- Not accepted
Inclusion 10
- Minimum age: 18 years
- Study condition: Leukemia, Lymphoma, Myeloma, Myelodysplastic Syndromes, Myeloproliferative Neoplasm
- Be diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN).
- Have received, be receiving, or be planning to receive primary or relapse treatment for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN) and meet at least one of the following criteria:
- Be currently receiving treatment which started within the past 18 months OR
- Be planning to start treatment within one month OR
- Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.
- Not be currently participating in any LLS programs or services
- Be willing to be followed for 6 months
- Speak English or Spanish
Exclusion 8
- Are not diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
- Do not meet at least one of the following criteria if treated or planning to get treated for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN):
- Be currently receiving treatment which started within the past 18 months OR
- Be planning to start treatment within one month OR
- Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100 days.
- Are currently participating in any LLS programs or services
- Are not willing to be followed for 6 months
- Do not speak English or Spanish.
Where
3 sites, 3 recruiting
Sylvester Comprehensive Cancer Center
Miami, Florida, United States
University of Chicago Comprehensive Cancer Center
Chicago, Illinois, United States
Mays Cancer Center at UT Health San Antonio
San Antonio, Texas, United States
Contact
-
Carlos Melara, MD
3052438300 cam32407@med.miami.edu
-
Sara Fleszar-Pavlovic, PhD
Potential match only. Final eligibility is determined by the study team.