SMYLS Multi-site Trial
About this study
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
- Condition
- Sickle Cell Disease
- Tested
- Voice Crisis Alert V2, Electronic educational materials
- Sponsor
- Medical University of South Carolina
Who can join
- Age
- 14 to 21 years
- Sex
- All sexes
- Healthy volunteers
- Accepted
Inclusion 6
- Minimum age: 14 years
- Maximum age: 21 years
- Study condition: Sickle Cell Disease
- documentation in the electronic health record of any type of SCD
- owns mobile device compatible with the intervention
- access to the internet
Exclusion 4
- Plans to relocate outside of study site area in the next 12 months
- Plans to transition to adult care in 12 months or less
- Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study
- non-English speaking
Where
1 site, 1 recruiting
Medical University of South Carolina
Charleston, South Carolina, United States
Contact
-
Shannon Phillips, PhD, RN
843-792-9379 phillipss@musc.edu
-
Margie Prentice, MBA
843-792-4771 prenticm@musc.edu
Potential match only. Final eligibility is determined by the study team.