Promoting Resilience Among Adolescents and Young Adults With Sickle Cell Disease
About this study
Adolescents and young adults with sickle cell disease (SCD) face challenges managing their illness and maintaining their well-being. This study proposes to test the feasibility and acceptability of a resilience-promoting intervention through a Collaborative Care Model. The primary goal is to determine with the resilience intervention (PRISM) is feasible and acceptable for adolescents and young adults with SCD. Exploratory outcomes include whether this intervention improves depression, anxiety, and pain interference.
- Condition
- Sickle Cell Disease
- Tested
- Collaborative Care Model, Promoting Resilience in Stress Management
- Sponsor
- Boston Children's Hospital
Who can join
- Age
- 8 to 25 years
- Sex
- All sexes
- Healthy volunteers
- Not accepted
Inclusion 11
- Minimum age: 8 years
- Maximum age: 25 years
- Study condition: Sickle Cell Disease
- Aged ≥ 8 and ≤ 25 years of age at baseline
- Diagnosed with Sickle Cell Disease (HbSS, HbSC, HbS-Beta Thalassemia, and other related hemoglobinopathies)
- Receiving Medical Care at the DFCI/BCH Blood Disorders Center.
- Scored \> 9 on Patient Health Questionnaire 9-item (PHQ-9) or Generalized Anxiety Disorder (GAD)
- Able to speak English or Spanish language (for PRISM sessions)
- Able to read English or Spanish language (for completion of surveys)
- Cognitively able to participate in PRISM sessions and complete written questionnaires and surveys, as judged by the site investigator
- Willing and able to adhere to the study visit schedule and other protocol requirements
Exclusion 1
- \* does not meet above criteria
Where
1 site, 1 recruiting
Boston Children's Hospital
Boston, Massachusetts, United States
Contact
-
Abby Rosenberg, MD
617.632.5286 abbyr_rosenberg@dfci.harvard.edu
Potential match only. Final eligibility is determined by the study team.