Adapting the FACETS Program to Sickle Cell Disease
About this study
Adaptation of a fatigue management program combining the principles of cognitive-behavioral therapy and energy conservation strategies (FACETS program) for a population of adult patients with sickle cell disease (Drépa-FACETS program).
- Condition
- Fatigue Symptom, Sickle Cell Disease
- Tested
- Drépa-FACETS Program
- Sponsor
- Versailles Hospital
Who can join
- Age
- 18 years and older
- Sex
- All sexes
- Healthy volunteers
- Not accepted
Inclusion 5
- Minimum age: 18 years
- Study condition: Fatigue Symptom, Sickle Cell Disease
- Participant having freely given his oral agreement.
- Participant with a major sickle cell syndrome, regardless of genotype (e.g. SS, SC, Sbeta).
- Participant with a sufficient command of spoken and written French to take the assessments, complete the questionnaires, follow the program sessions and carry out the home exercises.
Exclusion 4
- Participant with one or more severe psychiatric pathologies (e.g. severe depression, psychosis) that could interfere with the conduct of the study, in particular the primary and secondary endpoints.
- Participants with another chronic pathology causing fatigue.
- Participants in vaso-occlusive crisis (VOC) or hospitalization.
- Participant under legal protection (guardianship, curatorship, safeguard of justice, deprived of liberty).
Where
2 sites, 1 recruiting
CHU Grenoble Alpes
Grenoble, France
Hospital Versailles
Le Chesnay, France
Contact
-
Michalina DANNOUNE
0139638856 mdannoune@ght78sud.fr
-
Damien OUDIN-DOGLIONI, PhD
0476748839 damien.oudin-doglioni@univ-grenoble-alpes.fr
Potential match only. Final eligibility is determined by the study team.