ATHNdataset Registry
About this study
The Hemophilia Treatment Center (HTC) where you receive care is working with The American Thrombosis and Hemostasis Network (ATHN) to look at the quality of life of people with blood disorders and problems. Doctors, scientists, policymakers, and other health care providers need a large amount of information from a lot of people to answer scientific, public health, and policy questions about better ways to treat blood disorders. They will use the information from the ATHNdataset to answer these questions.
- Condition
- Hemophilia, Thrombosis, Hemophilia A, Hemophilia B, Sickle Cell Disease, Glanzmann Thrombasthenia, Bleeding Disorder, Blood Disorder, Von Willebrand Diseases
- Sponsor
- American Thrombosis and Hemostasis Network
Who can join
- Age
- Not specified
- Sex
- All sexes
- Healthy volunteers
- Not stated
Inclusion 4
- Study condition: Hemophilia, Thrombosis, Hemophilia A, Hemophilia B, Sickle Cell Disease, Glanzmann Thrombasthenia, Bleeding Disorder, Blood Disorder, Von Willebrand Diseases
- Any participant evaluated for or the potential to have a blood disorder who has an encounter with an ATHN Affiliate.
- Participants of any age.
- Participant is able to provide consent or assent; a Legally Authorized Representative (LAR) may provide consent on a participant's behalf if a participant is unable to provide self-consent
Exclusion 1
- Any participant unable to provide consent or assent to participate in the ATHNdataset
Where
1 site, 1 recruiting
American Thrombosis and Hemostasis Network
Hickory, North Carolina, United States
Contact
-
Emily Callegari, RN
8003602846 ecallegari@athn.org
-
Carol Fedor, RN
8003602846 cfedor@athn.org
Potential match only. Final eligibility is determined by the study team.